She underwent surgery for a brain tumor and was married for 44 days, with 73 points in her head – 05/06/2022

Neolinguistic trainer and programmer Daiene Berdoldi, 39, discovered a malignant brain tumor when she was about to get married. She gave up everything for surgery and postponed her dream of celebrating her union with her boyfriend. However, as recovery from surgery was better than expected, I was able to get married on the same day and place I had planned. before. THE Daien describes the fight against cancer below:

“The first signs of my head cancer were crises, but they weren’t immediately related to a person who felt sick on the ground. They were different, I had real partial vision, but that didn’t happen. At that moment, they were the last memories.

One such episode was when I spent the whole day playing with my Excel spreadsheet. In the afternoon, my boyfriend asked me something about the buffet, looked at him and the wedding calendar appeared next to himself floating in the air. Along with that, I felt sick and cold. I was scared, but as I was tired, I thought it was something in my head.

Image: Personal archive

Another example of confiscation occurred at a work meeting. As everyone was talking, I could hear the screaming and the sound disappeared from nowhere. I felt like I was watching a scene in silence on a TV.

There was also a situation where I had just met a person who looked like the face of an acquaintance. As I was talking, the images of the faces of the two people merged, which made me doubt. I didn’t know who I was talking to.

I had been losing peripheral vision and consciousness for a long time, but I realized that something was wrong and strange with me for passing a red light after receiving a traffic card — I hadn’t received a card in years. No doubt I passed by a closed lighthouse without paying attention, then I realized that I was risking my life and the lives of others and decided to seek medical attention.

In November 2019, I went to the neurologist and explained everything that was going on. He said those episodes were a kind of crisis. He ordered some tests to investigate the problem and told me that if he had to make a diagnosis right now he would tell me it was a brain tumor. I didn’t believe it, but I admit I was worried.

Confirmation

Daiene Berdoldi, surgery - Personal archive - Personal archive

Daien underwent surgery on January 30

Image: Personal archive

I had an MRI on December 27th, I noticed that the doctor who did the examination was uncomfortable with what I saw, but they didn’t say anything, they told me to wait for the result, on January 4th.

The day before, I woke up anxiously. I went to the lab and got the result. When I opened it, I couldn’t believe what I was reading: “infiltrating and spreading a primary brain tumor.” The cancer had already covered 25% of my brain, mostly spreading to the right side and left side. At that moment, I braked and went into shock. Then when I got home and then I told my boyfriend, I started crying.

At the consultation, the oncologist confirmed the diagnosis and said that my case was surgical. Within three and a half weeks, I went with four neurosurgeons to hear different opinions — the previous one was very rough for me.

When I asked if I could have surgery, I was worried about the wedding scheduled for March 14, 2020, and I told her that I had hired and closed everything, including my honeymoon.

The surgeon said, “Forget it, you can cancel the wedding. You are very upset. It’s not your tumor that’s going to kill you, it’s your anxiety. ‘ I was annoyed with the comment and his other behavior, and I changed doctors.

The fourth neurosurgeon welcomed me and treated me in a more humane way, but said that since we didn’t know what the operation or treatment would be like, the best thing to do was to postpone the wedding.

I was devastated. Marcos and I spent four years together, three of us living in the same house. Formalizing unity with our friends and family was a dream come true. But by agreeing, we decided to cancel everything until it was all right.

Also, the discovery of the tumor came at a time when I was at the peak of my career, at the age of 36. I am a trained veterinarian, but I work as a neurolinguistics coach and programmer and I have a consulting and people management company. My company was ‘flying’, I was doubling sales and opening new classes.

Operation

Daiene Berdoldi points - Personal archive - Personal archive

Dain took 73 points in surgery

Image: Personal archive

I had surgery on January 30th. Doctors would try to remove 70-80% of the tumor and remove the rest with cancer treatment. I had some convulsions after the operation and then no more. My recovery was so quick and amazing that the doctor allowed me to reschedule the wedding before starting radiation therapy.

I had a serious conversation with Marcos and asked him if he really wanted this. I had brain cancer, I didn’t want to carry that burden. He replied, “Arm me, wig, I’m going to marry you in a wheelchair, if I have to take you down the aisle, I’ll do it. All I want is to marry you. ‘

44 days after the operation, I got 73 points in my head (2 infected) and got married with a huge scar. The event was scheduled to take place on the same day and place as before the operation, as I had planned from the beginning.

The wedding was a celebration of my resurrection, of my life, it was wonderful. “

Daiene Berdoldi, marriage - Personal archive - Personal archive
Image: Personal archive

In April, I started my first of 30 sessions of radiotherapy and completed 12 cycles of oral chemotherapy. My treatment was successful because of the positive way I dealt with it. I lost half my hair, I suffered side effects, I was sick, unwell, I fell asleep, I rested at work, but I always focused on the solution and not on the problem, I went to the end result.

Upon receiving the diagnosis, I became my coach, using coaching tools as a bridge to the future. I saw myself recovering, working, paying attention to my clients. I also used neurolinguistic programming: I trained to listen to various inner voices and try to understand what positive messages they meant to me. In addition, I took care of my diet and physical activity.

Daiene Berdoldi - Personal archive - Personal archive
Image: Personal archive

In the midst of that process, I released my first book, ‘Behind the Scar’, the first pages written in the hospital a few days before the operation. The book is a legacy, a source of inspiration to help people through the most difficult times of their lives. There, I recount my career and dedicate it to my partner and foundation, Marcos.

The title of the book is inspired by the scars I have on my head, it represents a painful process, but it also has a lot of meaning and learning. Brain cancer helped me reshape my priorities, saying “no” more to others and saying “yes” more to myself, making more assertive decisions, living more intensely, and loving myself first ”.

Brain tumor: types, symptoms and treatment

1 – What are the types of brain cancer?

According to Daniel kuberoOncology medical oncologist CEON+ and an assistant professor at ABC Medical School, the brain is made up of several cells with different functions. Each cell type can cause a different type of cancer.

The most common are those originating in glial cells that are responsible for maintaining, protecting, and nourishing neurons; this group of tumors is called glioma. Another common cancer is meningioma, which occurs in meningeal cells in the membrane that covers the brain.

It is important to distinguish between brain cancers and those that occur in other parts of the body. “In this case, we call it brain metastasis, which has a different treatment and prognosis than tumors that originate in the brain,” says Cubero.

2 – What are the causes?

Most brain tumors are sporadic, with no clear cause, risk factor, or known genetic disorder in the family to date. However, some families with rare genetic disorders may be more likely to develop brain cancer.

3 – What are the symptoms?

Initially, brain tumors cause no symptoms. As the cancer grows and the surrounding structures are compressed, it can cause permanent and progressive headaches and convulsions.

“Other manifestations depend on the location of the cancer in the brain, and may include visual disturbances, changes in balance and memory, or a lack of motor coordination,” says oncologist Daniel. kubero.

4 – Does brain cancer cause different types of seizures?

Yes. Convulsions can be partial, when only part of the brain is damaged, or generalized.

Partial seizures may appear as visual or auditory hallucinations, or involuntary contractions of body parts. In general crises, the individual loses consciousness and suffers from generalized muscle contractions within minutes. Convulsions occur because the diseased areas of the brain begin to send electrical impulses that stimulate the rest of the organs, like a “short circuit.”

5 – How is the diagnosis made?

It is performed by imaging tests, mainly by magnetic resonance imaging. Once there, brain tumors are clearly visible in this study.

6 – What is the treatment like?

The basis for the treatment of brain cancer is surgery, except in rare subtypes such as lymphoma, where surgical intervention usually has no benefit.

Because brain structures are so delicate and noble, cancer removal must be done with the greatest possible margin of safety, with the risk of tumor cells remaining. Therefore, local treatment is usually complemented by radiotherapy.

Chemotherapy, considered a systemic treatment, is able to reach all tissues through the bloodstream, including areas infected with tumor cells that cannot be detected by imaging tests.

7 – What can be the consequences for a person with brain cancer?

The effects of treatment will depend on the size and location of the initial tumor. “Fortunately, in most cases the most noble and vital areas of the brain are not compromised. Therefore, the patient may have only skin scars and psychological problems related to the process,” says Daniel. kubero.

However, memory loss and speed of reasoning may also be a consequence of treatment. In more severe cases, motor deficits, changes in motor coordination, and balance may also occur.

8 – Is brain cancer curable?

Many subtypes of brain cancer are transmitted, especially low-grade (less aggressive) tumors and earlier cases. But even in the most advanced cases and with the most aggressive subtypes, there are treatments that allow the patient to live with quality for a long time.

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