Maria Clara Pimentel
Children and adolescents with Autism Spectrum Disorder (ASD) are becoming less and less likely to receive therapy offered by Unimed Natal coverage. Removal of services began in early April. After holding a demonstration in front of the co-operative headquarters and also holding a meeting with the directors, the parents and guardians of the children claimed that they had not advanced in their demands. Now they are organizing another protest in the streets of the city.
The group wants to hold a demonstration on Salgado Filho Avenue, next to one of the city’s largest shopping malls, located in the Eastern Zone. According to one of the leaders of the Jessi Dantas movement, the aim of the protest is to draw attention to the problem, as the cooperative refuses to respond to the problem.
“He doesn’t want to talk to them anymore, what are we going to talk about? We revealed everything. We made a booklet to guide parents and suggested that they do what they needed to do. They blamed the clinics, but it’s really everyone’s fault and it’s the children who are being punished, ”said the mother, who is also a nurse.
After a protest in front of the Unimed headquarters, the parents managed to meet with the directors of the cooperative on April 20. At the time, it was justified that the organization was undergoing internal restructuring and that the situation would be resolved soon. Almost a month later, parents reported that the problem had worsened.
“The president of Unimed said he was aware that it was just an internal problem that they were trying to solve. In fact, this is not the case, they are not responding to us anymore, on the contrary, their response is to cancel more and more therapies. So we already understood the message, ”said Jessi Dantas, Lis’s mother, who is almost three years old.
So far this month, six therapies have been removed from Unimed Natal’s list, including Physical Education, ABA (Applied Behavior Analysis), DENVER, Therapeutic Swimming, Music Therapy and Hydrotherapy, in addition to Assistive Therapy (AT). home and school atmosphere.
Lis, Jessi’s daughter, was difficult when she was without help at school. “He spent two months full of bruises, throwing himself against the wall and the floor. It was completely deregulated at school, ”he explained. Since there is no professional to provide therapeutic support, it is difficult to know how to take care of the little one who belongs to the school, which is difficult when the faculty is not prepared for it. “It was a very complicated time because the school didn’t know how to deal with it. I had to have several meetings to explain how it was supposed to go, ”says Jessi.
For children who are accustomed to therapeutic support, it can be very painful to see this removed because the autistic person is so attached to their routine. “She had this routine, she knew she had that support, she trusted that person, and all of a sudden she was completely deregulated,” said nurse Jesi Dantas.
On April 28, the Federal Public Ministry (MPF) issued a recommendation to the National Agency for Complementary Health (ANS) to take measures to ensure proper care of children with Autism Spectrum Disorder (ASD) through the Unimed health plan. However, there is no general legal definition that requires plans to offer all therapies.
Last Friday (6), the Supreme Court of Justice (STJ) once again ruled that it was an abuse to deny coverage of a treatment plan that was deemed appropriate for patients with autism. The decision was rejected by Unimed Rio, Rio de Janeiro.
Attorney Airton Ferraz, who represents some patients, says state court rulings are always unanimously punishing health plans that do not guarantee specific treatment for autistic children, condemning cooperatives that do not provide services to pay moral damages. damage. In practice, however, this is of little value, as those who take legal action in these cases are a minority. All patients who do not follow this route should pay for medical treatment outside the health plan.
The TRIBUNA DO NORTE report contacted the Unimed Natal press office for an official position, but has not received a response so far. The space remains open for the company’s appearance.